Welcome to the first and only Bladder Exstrophy app of its kind!
This app is designed to bring you all the information you need regarding Bladder and Cloacal Exstrophy, as well as Epispadias, from leading experts. There is something for everyone - new parents of exstrophy children, experienced exstrophy parents, as well as teen and adult individuals with exstrophy. You can find informational videos about Bladder Exstrophy, human development, and trauma-related videos to provide you with as much information as possible to make informed decisions and help guide you in your exstrophy journey.
We have also created a private forum where you can ask and discuss questions, find support, advice, or guidance from others in the BE community.
We the Be is sponsored by The Black Foundation and was developed by the team at OKC Kids Urology www.okckidsurology.com in partnership with Association for Bladder Exstrophy Community (A-BE-C) www.bladderexstrophy.com.